Tuesday, June 26, 2007

I have no idea what just happened

I'm not sure what the heck happened today, but it appears that I made the first cut for acceptance into the Transplant Center. I was asked a gazillion questions that I have answered a gazillion times to various hospital and doctors over the past few years. I was poked and prodded, inhale, exhale, swallow, hold your hands out palms up. Then the Dr started rattling off orders to his nurse, bloodwork to be done today at the hospital (20 vials, seriously I think I broke my old record) , CT's, MRI's, Doppler start with (which are redundant, I've had most of them done in the last three months) . Once all those results are back , I will get a new and different battery of tests. Oh and I have to cut down on my current medications..except for one which should be increased. Huh? Cut my psych drugs down? My migraine meds? What about quality of life? You guys really want me to go crazy? Oh and while your asking your psychiatrist for a reduction in meds, ask him for a clearance letter to have a transplant.

My head is spinning from all this new information and how quickly they are ready to get going, though I'll probably be placed as inactive on the list depending on the test results of course. Then when it's time, A click of the mouse and my score will be entered and boom I'll be placed appropriately on the list by priority.

I'm not sure if any of this makes sense or not , in my head it doesn't. It's kinda like today was a fog, we were there for over 3 hours and had no wait time at all. Maybe tomorrow this will all seem clearer. Right now I'm suppose to take my nightime meds and I'm thinking do I take them or cut them in half or should I just wait until I see the Dr next? For now I'll take them cause withdrawel is a bitch and I'm some pretty high dosages. I just love when one Doc says here take all these and the other says No, lets get you off all this medicine. Fuck.


meno said...

I can't tell if this is good news or not. It sounds like you can't tell either.

I do hate it when doctors give conflicting orders. That when you need a nurse advocate at your side.

kim said...


Which part of you is giving you all of this trouble?

I'm hugging you right now -- big hugs and love to you.

...And every bumper sticker I can think of. said...

This sounds like good but scarey news!!!

My thoughts and prayers are with you and your family.......

And thanks so much for sharing with us all......

Cyd said...

Omigod, that sounds totally overwhelming but optimistic. I guess... Tho aren't you likely to have to wait a long time? So I'm nervous about you cutting your meds.